Whether you are a friend, family member, or caregiver, supporting someone who has survived a brain injury can be a long, complex, and often isolating journey. You may find yourself navigating unexpected changes in your own life while helping your loved one make sense of the many changes in theirs.
We encourage you to seek connection with other caregivers and support yourself along the way. Even in such a deeply personal and life-changing experience, you don’t have to feel alone. There is understanding, support, and community waiting to walk alongside you.
Support Groups for Caregivers
- BIC-NW Brainstormers Friends & Family 🧠
- Brain Northwest (formerly BIAWA Brain Injury Alliance of Washington) Partner/Spousal Support Group 🧠
- BIHN Brain Injury Hope Network 🧠
- Caregiver Resource Center Orange County
For a PDF Copy of the guide please click:
Resource Guide for Friends & Family of Brain Injury Survivors
Resources with a “🧠” next to it also have resources for survivors.
General Resources for caregivers
-
- Love Your Brain 🧠
- Music 🧠
- Oregon Brain Injury Program – Statewide resource and referral line 🧠
- BrainLine 🧠
Other Resources for Caregivers
- Aging with Advocacy
- BEST Brain Education Strategies Technology 🧠
- Brain Injury Association of America 🧠
- Headway UK 🧠
- Oregon Care Partners
- Powerful Tools for Caregivers
- www.powerfultoolsforcaregivers.org/
- University of Washington Memory and Brain Wellness Center
- Wise Caregiving
Note: if you are a member of a church or worship community, check to see if they offer support resources or groups for caregivers.
Book for Understanding Brain Injuries and Caregiving
There are many books available about brain injury and caregiving. This list is not meant to be comprehensive, but to serve as a good starter list for you and your loved one.
- Chicken Soup for the Soul: Recovering from Traumatic Brain Injuries: 101 Stories of Hope, Healing, and Hard Work by Amy Newmark and Carolyn Roy-Bornstein
- I’ll Carry the Fork!: Recovering a Life After Brain Injury by Kara L. Swanson
- Metamorphosis: Surviving Brain Injury by David A Grant
- My Stroke of Insight by Jill Bolte Taylor
- The Brain that Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science by Norman Doidge
- The Conscious Caregiver by Linda Abbit
- To Root and to Rise, Accepting Brain Injury by Carole J Starr
- Who Will Care for Me When I Am Old? by Joy Loverde
If you have other valuable resources to suggest for inclusion on the list please contact info@bic-nw.org